The Lived Experiences of Parents from Manggahan Elementary School in Raising a Child with Autism Spectrum Disorder Relating to Parental Stress, Support Needs and Coping Mechanisms

Abstract

Autism spectrum disorder (ASD) is a neurological condition that affects the way individuals communicate, interact, and behave. According to the World Health Organization, approximately 1 in 100 children have been diagnosed with autism spectrum disorder worldwide. Atos (2024) stated that parental stress in families with children diagnosed with ASD can be significant, since parents often feel overwhelmed by their children’s need. This study aimed to explore the lived experiences of parents from Manggahan Elementary School in Manggahan, General Trias City, Cavite in raising a child with ASD, focusing on its effects on parental stress, the support needed by parents, and coping mechanisms they adopt. To gather the essential data, in-person interviews were conducted with parents of children with ASD, selected through a purposive sampling technique. Semi-structured questionnaires, validated by licensed psychologists with a master’s degree, were used during the interview. Thematic analysis was then utilized by the researchers to identify and reveal the patterns and recurring themes. The findings highlight how the stressors affect the parent’s caregiving capability, emotional well-being, social interaction, and financial stability. Furthermore, the key informants emphasized their need for additional support from the government, health institutions, and other organizations. The study offers recommendations for policies, practices, and an action plan aimed at promoting awareness and providing support for parents caring for children with ASD, aligning with SDG 3’s vision of good health and well-being.